Tankie Uyghur genocide + Russian war crimes denialist mods:
lemmy.ml 🤝 Chinese + Russian social media
I know I’ll get banned for this, but I figured I’d go out holding my head high.
Tankie Uyghur genocide + Russian war crimes denialist mods:
lemmy.ml 🤝 Chinese + Russian social media
I know I’ll get banned for this, but I figured I’d go out holding my head high.
Cochafers and Cockroaches aren’t the same species btw
Works fine in french election abroads.
But yes vote by mail is best.
Yep. Imagine being bedridden with a severe illness and when people who don’t understand meet you (which is most people) they go “get up and live your life” or “get up and do X”
A lot of people (even a few doctors!) brain seems not able to comprehend that someone could be sick and not get better ie. chronic illness.
I give. But also I talk, I listen, I don’t toss a coin and ignore.
I genuinely take the time to talk to someone. If they seem nice, safe, and don’t strike me as being “impulsively dangerous”, I might invite them to share a meal with me, or to a café.
Obviously I can’t do this for everyone, but when I’m low on money like you, I might literally just invite someone to my home and make them a piece of toast, ask them what their day to day is like, if it sounds like they need an old blanket, give them one if I’ve got a spare.
deleted by creator
That’s really weird. Because I obviously haven’t paid a cent to Musk either, and I’ve gone “viral” on twitter.
I really just think it’s due to the fact there is a well established niche community of people of which I post very niche content on on twitter, so it’s rare to have a post that doesn’t do well for me. And if my post ends up more general than the niche ie. disability in general and not just my illness, it sometimes goes viral.
It’s a phyiscal illness
A lot of them are people I know in real life. And others are respected / “well known” members of the community who have significant contributions outside of twitter. Can’t tell if the 300 likes are all legit on a post with 300 likes. But I am fairly certain about 100 of those are because I genuinely know the people behind the account.
Mastodon I rarely get one or two favourites. BlueskyI get either ignored or 5-10 likes. Twitter I get anywhere from 5-multiple thousand likes, but 30-100 with maybe 2-5 quality replies is the most common range. I think issue is content is too niche and bluesky/mastodon need to grow before a significant chunk of people with my illness move there.
I wish I could leave twitter, I hate musk with a passion.
I have a couple thousand followers on twitter but no followers on bluesky or mastodon ahahh. It’s so hard to grow them. I post my content on all three for now.
Until the party of freedom bans it. Hasn’t florida already?
If it’s in international waters, is that necessary?
haha agree, suprised to find so many people knowledgeable about ME and pwME on this page, is there a Lemmy server for it?
Oh my god exactly.
I work on a pretty neglected Neuroimmune illness ME/CFS (hence my username) with really low recovery rates whether treated or untreated (~5%).
And the number of “clinical trials” of things like “Graded Exercise Therapy” or “CBT” or “Acupuncture” or [insert random supplement] that claims to “cure” the condition is so large. Except these trials all rely on subjective outcome measures and none are placebo controlled, oh and ofcourse the results never last in long term followup.
This is why I hate it so much when authors overstate their findings in abstract, which unfortunately is extremely common in medicine.
Urgh I hate apple. Can’t choose something else but these default options. And I have to use the safari browser because it is the only one that has the accomodations for my disability I need.
(replying from my alt cuz image hosting is down on blahaj.zone)